Sunday, February 15, 2015

When will it end?!

Isaiah continues to be unwell.  We ended up at the hospital again last night and will go back again today.
I've looked back since we returned from Vietnam on December 14th and discovered that Isaiah has been sick every week.
It all started on December 17th.  Isaiah received regular chemo but also had a fever and had to return to hospital on the 18th.  After opening presents Christmas morning, he spiked a fever and returned to the hospital.  He was neutropenic and was admitted.  He stayed there for five days with Dave because we were all too sick to visit him.  On December 29th he was discharged but was back again on New Year's day with a fever.  We returned on the 2nd for more antibiotics.  Isaiah continued to be unwell and spiked another fever on the 7th of January.  More antibiotics on the 7th and 8th.  January 14th was regular chemo and Lumbar puncture.
Then the whole week of January 18th, Isaiah was vomiting and had diarrhea. (Everyone except for Dave was also sick).  January 27th was blood work day.
On February 3rd, he spiked another fever and was back to the hospital for more antibiotics on the 3rd and 4th.  February 11th, regular chemo.  Now February 14th and 15th for more antibiotics due to fever.

The total number of times at the hospital since Victoria has joined our family is 18.  We've had something every week.  I kept thinking three kids was so much more work but now I'm thinking that it's been a lot of other things.  If we were all well and didn't have to visit the hospital so much, three kids would be a breeze.
February 13th - I knew the fever was imminent

At the hospital late February 14th

Isaiah has made up words for all of the things he needs to get done at the hospital.  I don't know how he comes up with these words.  It's adorable and I had to document them somewhere:

npw - "the sucker"
npw (without vacuum) - "nose blob"
eye swab - "eye slob"
when they access his port - "getting a poke"
where he gets his LP - "the special room"
Dr. Schultz (his oncologist) - "the pickle doctor"
his VAD - "my button" or "my rock"

Adam also calls the nurses "teachers" which is adorable.

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